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Decision Support for Dementia Caregivers

N/A
Recruiting
Led By Kalisha Bonds Johnson, PhD RN PMHNP
Research Sponsored by Emory University
Eligibility Criteria Checklist
Specific guidelines that determine who can or cannot participate in a clinical trial
Must have
Be older than 18 years old
Timeline
Screening 3 weeks
Treatment Varies
Follow Up 0-month, 1 month, 3 months
Awards & highlights

Summary

This trial is designed to help African American daughters make healthcare decisions for their parents who are living with memory loss to improve the quality of life of African American families.

Who is the study for?
This trial is for African American adult daughters aiding their parents with mild to moderate Alzheimer's or dementia. Participants must be able to use email and the internet, speak English, and help with healthcare decisions. Excluded are those with major neurological diseases other than Alzheimer's or severe psychiatric disorders.
What is being tested?
The study aims to create a decision-making program tailored for African American families where daughters make healthcare choices for parents with memory loss. It involves surveys/interviews about caregiving experiences and testing a culturally specific prototype intervention.
What are the potential side effects?
Since this trial focuses on interviews and surveys rather than medical treatments, there are no direct side effects from medications or interventions typically associated with clinical trials.

Timeline

Screening ~ 3 weeks
Treatment ~ Varies
Follow Up ~0-month, 1 month, 3 months
This trial's timeline: 3 weeks for screening, Varies for treatment, and 0-month, 1 month, 3 months for reporting.

Treatment Details

Study Objectives

Study objectives can provide a clearer picture of what you can expect from a treatment.
Primary study objectives
Change in Decision Self-Efficacy Scale Score
Change in Quality of Life-Alzheimer's Disease (QoL-AD) Scale Score
Participant retention
+2 more

Trial Design

1Treatment groups
Experimental Treatment
Group I: Prototype InterventionExperimental Treatment1 Intervention
The prototype intervention will be likely family-based and focused on issues of communication, problem-solving, health system literacy, and family systems, all considered in the context of the African-American (AA) adult daughter role and cultural identity.

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Who is running the clinical trial?

Emory UniversityLead Sponsor
1,679 Previous Clinical Trials
2,583,626 Total Patients Enrolled
20 Trials studying Dementia
2,794 Patients Enrolled for Dementia
National Institute on Aging (NIA)NIH
1,733 Previous Clinical Trials
28,054,963 Total Patients Enrolled
281 Trials studying Dementia
23,628,981 Patients Enrolled for Dementia
Kalisha Bonds Johnson, PhD RN PMHNPPrincipal InvestigatorEmory University

Media Library

Prototype Intervention Clinical Trial Eligibility Overview. Trial Name: NCT05139290 — N/A
Dementia Research Study Groups: Prototype Intervention
Dementia Clinical Trial 2023: Prototype Intervention Highlights & Side Effects. Trial Name: NCT05139290 — N/A
Prototype Intervention 2023 Treatment Timeline for Medical Study. Trial Name: NCT05139290 — N/A
~20 spots leftby Dec 2026