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Matched healthy controls for Friedreich Ataxia (EARLY-FA Trial)

N/A
Waitlist Available
Research Sponsored by Friedreich's Ataxia Research Alliance
Eligibility Criteria Checklist
Specific guidelines that determine who can or cannot participate in a clinical trial
Must have
Be younger than 65 years old
Timeline
Screening 3 weeks
Treatment Varies
Follow Up baseline, 12 months, and 24 months
Awards & highlights

Summary

Multicenter, prospective, observational natural history and outcome measure study of children and young adults with Friedreich ataxia.

Eligible Conditions
  • Friedreich Ataxia
  • Rare Diseases

Timeline

Screening ~ 3 weeks
Treatment ~ Varies
Follow Up ~baseline, 12 months, and 24 months
This trial's timeline: 3 weeks for screening, Varies for treatment, and baseline, 12 months, and 24 months for reporting.

Treatment Details

Study Objectives

Study objectives can provide a clearer picture of what you can expect from a treatment.
Primary study objectives
Association between growth (height) and disease severity in FRDA

Trial Design

2Treatment groups
Experimental Treatment
Group I: Matched healthy controlsExperimental Treatment0 Interventions
Participants in the control group (Group 2) will be aged 4-21 years at enrollment and fulfill group matching criteria to an enrolled participant with FRDA (age, sex)
Group II: FRDA, genetically confirmedExperimental Treatment1 Intervention
individuals with FRDA, genetically confirmed, aged 4-21yrs

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Who is running the clinical trial?

Friedreich's Ataxia Research AllianceLead Sponsor
18 Previous Clinical Trials
5,960 Total Patients Enrolled
18 Trials studying Friedreich Ataxia
5,960 Patients Enrolled for Friedreich Ataxia
Jennifer FarmerStudy DirectorFriedreich's Ataxia Research Alliance
~200 spots leftby Sep 2028
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