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Decision Making Support for Parkinson's Disease

N/A
Recruiting
Led By Jiayun Xu
Research Sponsored by Purdue University
Eligibility Criteria Checklist
Specific guidelines that determine who can or cannot participate in a clinical trial
Must have
Self-report a clinical diagnosis of Parkinson Disease
Be older than 18 years old
Timeline
Screening 3 weeks
Treatment Varies
Follow Up 2 weeks post intervention
Awards & highlights
No Placebo-Only Group

Summary

This trial will test a novel intervention to help people with Parkinson's disease and their caregivers make future medical decisions. The investigators hypothesize that the intervention will be feasible and acceptable.

Who is the study for?
This trial is for English-speaking Parkinson's disease patients without dementia, who can navigate websites or have assistance to do so. They must have reliable phone or internet access and not have used the intervention resources before. Those with severe vision impairment even with glasses, or a low cognitive status score are excluded.
What is being tested?
The study tests a new program designed to help Parkinson's patients and their caregivers prepare for future medical decisions. It involves early conversations about potential choices they may face as the disease progresses, aiming to ease decision-making before serious communication and cognitive issues arise.
What are the potential side effects?
Since this trial focuses on decision-making support rather than medication, traditional physical side effects are not expected. Participants may experience emotional discomfort discussing future health scenarios.

Eligibility Criteria

Inclusion Criteria

You may be eligible if you check “Yes” for the criteria below
Select...
I have been diagnosed with Parkinson's Disease.

Timeline

Screening ~ 3 weeks
Treatment ~ Varies
Follow Up ~2 weeks post intervention
This trial's timeline: 3 weeks for screening, Varies for treatment, and 2 weeks post intervention for reporting.

Treatment Details

Study Objectives

Study objectives can provide a clearer picture of what you can expect from a treatment.
Primary study objectives
Change from baseline Advance Care Planning Engagement Survey at 2 weeks
Intervention feasibility/acceptability

Awards & Highlights

No Placebo-Only Group
All patients enrolled in this study will receive some form of active treatment.

Trial Design

1Treatment groups
Experimental Treatment
Group I: Parkinson's medical decision making support intervention groupExperimental Treatment1 Intervention
All participants will complete an online medical decision making intervention, lasting about 60 minutes, and complete pre and post surveys.

Find a Location

Who is running the clinical trial?

Purdue UniversityLead Sponsor
232 Previous Clinical Trials
71,256 Total Patients Enrolled
Jiayun XuPrincipal InvestigatorPurdue University

Media Library

Parkinson's medical decision making support Clinical Trial Eligibility Overview. Trial Name: NCT05084209 — N/A
Parkinson's Disease Research Study Groups: Parkinson's medical decision making support intervention group
Parkinson's Disease Clinical Trial 2023: Parkinson's medical decision making support Highlights & Side Effects. Trial Name: NCT05084209 — N/A
Parkinson's medical decision making support 2023 Treatment Timeline for Medical Study. Trial Name: NCT05084209 — N/A
~0 spots leftby Nov 2024
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