Indigenous Patient Navigator Support for Chronic Diseases

N/A

Waitlist Available

Research Sponsored by University of Alberta

Eligibility Criteria Checklist

Specific guidelines that determine who can or cannot participate in a clinical trial

Must have

Having a pediatric-onset chronic health condition of at least 3 months' duration that requires adult specialty follow-up care, including physical conditions (e.g., diabetes), mental health conditions (e.g., anxiety, depression), and/or developmental disorders (e.g., autism, fetal alcohol spectrum disorder)

Age 16-25 years

Timeline

Screening 3 weeks

Treatment Varies

Follow Up 18 months

Awards & highlights

No Placebo-Only Group

Summary

This trial aims to test a new program led by Indigenous individuals to help Indigenous teenagers with chronic health conditions in Maskwacis, Alberta. The program was developed with input from community members, Elders

Who is the study for?

This trial is for Indigenous adolescents with chronic health conditions in Maskwacis, Alberta. It's designed to help them as they become adults and switch from pediatric to adult healthcare services. Participants should be part of the community and interested in receiving support from an Indigenous Patient Navigator.

What is being tested?

The study tests a new program where an Indigenous Patient Navigator helps young adults manage their chronic diseases during their transition into adult healthcare. The effectiveness of this culturally tailored support will be evaluated.

What are the potential side effects?

Since this intervention involves patient navigation and support rather than medical treatment, there are no direct side effects like those associated with medications or procedures.

Eligibility Criteria

Inclusion Criteria

You may be eligible if you check “Yes” for the criteria below

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I have a long-term health condition since childhood needing specialist care.

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I am between 16 and 25 years old.

Timeline

Screening ~ 3 weeks3 visits

Treatment ~ Varies

Follow Up ~ 18 months

Screening ~ 3 weeks

Treatment ~ Varies

Follow Up ~18 months

This trial's timeline: 3 weeks for screening, Varies for treatment, and 18 months for reporting.

Treatment Details

Study Objectives

Study objectives can provide a clearer picture of what you can expect from a treatment.

Primary study objectives

Qualitative Analysis - Semi-structured interviews

Secondary study objectives

Qualitative Analysis - Talking circles

Awards & Highlights

No Placebo-Only Group

All patients enrolled in this study will receive some form of active treatment.

Trial Design

1Treatment groups

Experimental Treatment

Group I: Indigenous Patient Navigator SupportExperimental Treatment1 Intervention

Participants will work with an Indigenous Patient Navigator (IPN) for up to 18 months. The IPN may have the following roles in supporting the youth +/- their caregiver in managing their healthcare and health condition: * Spiritual: connect with community Elders, connect with cultural programs, arrange smudging and ceremony * Physical: find housing, find a family doctor, arrange transportation, fill prescriptions, create a health passport * Mental: arrange health benefits, schedule appointments, find employment, connect to community services * Emotional: connect with peers, find mental health supports, support youth at appointments, communicate with youth's healthcare team

0 / 2Eligibility criteria met